- Potential benefitStrengthens individual genetic privacy by preventing sale of DNA data without each person's affirmative written consent.
- Potential benefitReduces risk of genetic discrimination by limiting third-party access to individuals' genetic information through bankr…
- StatesRequires deletion of unsold genetic data, lowering risk of future data breaches from estate-held DNA information.
Don’t Sell My DNA Act
Read twice and referred to the Committee on the Judiciary.
The Don’t Sell My DNA Act amends the Bankruptcy Code to treat genetic information specially. It bars approval of any sale, use, or lease of genetic information from a bankruptcy estate unless every affected person affirmatively consents in writing after the case starts, requires actual prior written notice to affected persons, and requires trustees to securely delete estate genetic information not sold or otherwise disposed of.
Privacy protection versus bankruptcy asset monetization and creditor recovery
Relative to its intended legislative type, this bill is a focused substantive amendment to the Bankruptcy Code that establishes protections for genetic information by prohibiting sale/use/lease without affirmative written consent, requiring prior written notice to affected persons, and mandating deletion of non‑disposed genetic data using court‑prescribed methods.
The Don’t Sell My DNA Act amends the Bankruptcy Code to treat genetic information specially.
It bars approval of any sale, use, or lease of genetic information from a bankruptcy estate unless every affected person affirmatively consents in writing after the case starts, requires actual prior written notice to affected persons, and requires trustees to securely delete estate genetic information not sold or otherwise disposed of.
The changes take effect on enactment and apply to pending and future cases.
Technocratic privacy measure with limited costs improves chances, but stakeholder pushback and committee/filibuster realities leave moderate uncertainty.
Relative to its intended legislative type, this bill is a focused substantive amendment to the Bankruptcy Code that establishes protections for genetic information by prohibiting sale/use/lease without affirmative written consent, requiring prior written notice to affected persons, and mandating deletion of non‑disposed genetic data using court‑prescribed methods.
Privacy protection versus bankruptcy asset monetization and creditor recovery
Who stands to gain, and who may push back.
These are examples from the analysis, not a ranked list of the most-affected groups.
- StatesReduces potential asset value recoverable from estates when genetic data cannot be sold, lowering creditor recoveries.
- Potential burdenImposes additional administrative and compliance burdens on trustees, increasing case processing time and costs.
- Potential burdenMay impede legitimate secondary uses of genetic datasets, including research and public-health activities reliant on ac…
Why the argument around this bill splits.
Privacy protection versus bankruptcy asset monetization and creditor recovery
Seen as a needed privacy protection preventing monetization of sensitive genetic data through bankruptcy.
It closes a gap that could expose non-debtors and relatives to commercial exploitation of DNA.
Views the bill as a reasonable targeted privacy measure but worries about procedural friction in bankruptcy.
Supports protections but wants clarity on costs, court mechanics, and narrowness of scope.
Sees the bill as a federal intrusion into bankruptcy asset administration that restricts property monetization.
Concerns center on creditor recoveries, added costs, and precedent for restricting sales of estate assets.
The path through Congress.
Reached or meaningfully advanced
Reached or meaningfully advanced
Still ahead
Still ahead
Still ahead
Technocratic privacy measure with limited costs improves chances, but stakeholder pushback and committee/filibuster realities leave moderate uncertainty.
- Absent cost estimate for trustee compliance and deletion
- Scope of 'genetic information' under cross-reference could be broad
Recent votes on the bill.
No vote history yet
The bill has not accumulated any surfaced votes yet.
Go deeper than the headline read.
Privacy protection versus bankruptcy asset monetization and creditor recovery
Technocratic privacy measure with limited costs improves chances, but stakeholder pushback and committee/filibuster realities leave moderat…
Relative to its intended legislative type, this bill is a focused substantive amendment to the Bankruptcy Code that establishes protections for genetic information by prohibiting sale/use/lease without affirmative writt…
Go beyond the headline summary with full stakeholder mapping, legislative design analysis, passage barriers, and lens-by-lens tradeoff breakdowns.